We are really proud to announce that we suppied flooring and fitting to this well deserving family.
The Sweet Family in WSM are happy and truly inspirational in their close-knit community. Louisa (14)
Max (11) and Harry (6) were born healthy and family life was good until Harry was diagnosed with a
genetic condition called Ehlers Danlos syndrome.
Harry is a wonderful child but is significantly hypermobile and suffers terrible pain in his joints,
unsettled sleep and chronic constipation as part of his condition. Harry is being assessed for Autism
although he is a very chatty little boy.
The family have been struggling with Harry’s health issues for the last 3 years, then in 2017, after
genetic testing, Louisa then 12 and Max then 9, were diagnosed with Friedreich's Ataxia, a rare and
neurodegenerative life limiting Neuromuscular condition, for which there is currently no treatment or
cure. It will see them as permanent full time wheelchair users in their teens. It can also affect their
speech, fine motor skills and vision amongst other things. They also have enlarged hearts, spinal
scoliosis and suffer fatigue as part of their condition but like Harry, they are children to be truly
admired. Amazingly, Max, who is also being assessed for autism, has stated if he dies he wants to
donate his organs to save other children, but his mother Cat (33) just can’t face filling in the form .
Cat can no longer lift the children in and out of the shower/bath, or carry them up the stairs. Louisa
and Max only manage the stairs by carefully and painfully crawling on all fours, which takes
considerable time and effort. Both of the boys are already part time wheelchair users with Max and
Lou to be permanently wheelchair bound, which means their tiny home will soon have to
accommodate three wheel chairs.
All three children now struggle with basic normal life at home, unable to undertake simple tasks
without help and with Louisa rapidly losing her teenage independence instead of gaining it, despite the
immense love and care from their inspirational parents Cat and Chris (41, car mechanic) and so that’s
why DIY SOS and the local kind volunteers are stepping up to help this truly deserving family.